Austin-area experts say the disorder is often hard to diagnose. "In all of Austin, it's just a handful," one doctor says.
"The goal is for individuals with this disorder to live a normal life," he said. They haven't been studied in a large trial (of just people with stiff person syndrome) because there aren't the people to have a large trial." "Early treatment is better," Metzler said. "We think it is an autoimmune disease," he said. "It's exceedingly rare," he said. All of the medications are given as "off-label use," Metzler said, because there are no treatments specifically for people with stiff person syndrome. Metzler also recommends physical therapy and occupational therapy. In all of Austin, it's just a handful," he said. Then doctors can try an immune-suppressing biologic drug called rituximab, which is an intravenous infusion that has been approved for diseases such as rheumatoid arthritis, non-Hodgkin's lymphoma, and chronic lymphocytic leukemia. Most people are between 30 and 60. It is very painful. It causes stiffness in the muscles in the back or abdomen, the legs or arms.
The rare, progressive neurological disorder causes stiff muscles in the torso, arms, and legs.
“I have lost all my freedoms. I was very active - it was a shock. I was a football coach. Mr Anderson said: “I am married with kids. Mr Alderson was first diagnosed with SPS in April 2021. The rare, progressive neurological disorder causes stiff muscles in the torso, arms, and legs.
Here are some examples on social media: Celine Dion was an enthusiastic advocate for Covid “vaccines” but “stiff person syndrome” is a noted adverse reaction to ...
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Canadian singer Celine Dion recently announced she is suffering from Stiff-Person Syndrome, inspiring claims on social media that her diagnosis is linked to ...
[recorded](https://perma.cc/BKA3-76TG?type=image). [Studies](https://perma.cc/C5CB-TYJ8) repeatedly find more heart complications following Covid-19 infection than vaccination. The list shared online details all the conditions that must be subjected to monitoring -- including rare ailments that have previously been associated with vaccines, such as [Guillain-Barre syndrome](https://perma.cc/PL7G-9Y4U). [Guilhem Sole](https://perma.cc/KK7Z-TRWV), director of the Reference Center for Neuromuscular Diseases at Bordeaux Hospital, also highlighted this fact on December 13: "Celine Dion has been complaining about these symptoms for a long time, long before the Covid." "The Stew Peters Show," a program AFP has repeatedly [fact-checked](/http%253A%252F%252Fdoc.afp.com%252F9FM82U-1) for spreading [vaccine misinformation](/http%253A%252F%252Fdoc.afp.com%252F9E94UF-1), also [attempted](https://perma.cc/VG46-PNZ8) to link Dion's illness to Covid-19 vaccines. [Pierre-Francois Pradat](https://perma.cc/V2CZ-GKN6), a neurologist at France's AP-HP Foundation, concurred. [list of ailments](https://perma.cc/KD8X-3ZTZ) shared in many of the posts comes from documents published by a group called [Public Health and Medical Professionals for Transparency](https://perma.cc/WLC6-QEEM). Sole, a specialist in neuromuscular disorders, said that he has "not seen an increase in the number of patients suffering from this syndrome." According to the US National Organization for Rare Disorders, the condition [affects](https://perma.cc/PL4S-EHQD) one in one million people and causes painful muscle spasms triggered by events such as loud noises, light physical contact or stress. AFP contacted Dion through a representative to ask if there was any indication her illness was related to the shot, but a response was not forthcoming. This is also the case for other vaccines," said Someone tell Celine Dion because you know the doctors will deny it has anything to do with medication's or vaccines even if it's on their list of side effects," says a December 10, 2022
Dominic Alderson struggles to hug his family and needs a stick when walking about the house after being diagnosed with Stiff Person Syndrome, the same ...
I was very active. Dominic said: "I am married with kids. "I have lost all my freedoms. It was a shock.” It is not just the spasms — there is a rigidity that comes with it,” Dominic said. "I was a football coach. "I was a fit person. "I already use a stick around the house, I use a pole to go outside too and that helps. It is my wife that gets it all in the neck, she does a lot for me and so do my kids." "I am at a higher risk of falling over and there is a 40% chance of me being in a wheelchair. "I have fallen down the stairs, fallen in the kitchen. "I am sure with the hard-working woman she is that she will be back in the studio recording when she gets familiar with the condition."
Celine Dion's children have been credited with providing the singer with support amid her ongoing Stiff-person syndrome battle.
I love you guys so much and I really hope I can see you again real soon." The twins are very mature for their age and René-Charles checks in and dotes on his mum all the time.” This means a lot to me. Celine Dion, 54, revealed earlier this month she had been diagnosed with Stiff-person syndrome (SPS), a rare neurological disorder with features of an autoimmune disease. "Take care of yourselves. The singer added that in order for her to return to the stage, she had "no choice" but to focus on her health.